15 June 2016

Sigmoid Endoscopy with Dilation - Numero Uno

Hooray! This hospitalization went great and Bennett is feeling wonderfully!  We are preparing for discharge in the next few hours.  As the doctor said to us this morning, "the best hospitalization is a boring one!"  And, thankfully, that it was!

Our morning started early yesterday.  We spent the night at a local hotel the night before, since we live two hours away, so we could be at the hospital at 5:45am.  

Despite Bennett's recent traumatic surgery in January, Bennett was in great spirits the morning of his procedure. 

Bennett literally counted down the days to his surgery starting a week out because he was so thrilled he was going to get the new toy he had wanted.  In our family, hospitalizations/invasive procedures usually equal a small treat.  Bennett's excitement over his new toy seemed to really set the tone for his procedure, in addition to the fact that Brian and I were very peaceful going in.  

My mom volunteered to come stay with us for a few days to allow Brian to be able to be with us overnight and throughout the procedure.  This really helped us pay attention to his needs while knowing the other two were being care for.

By now, we are now really well-versed on preparing Bennett to back for surgery.  During pre-op, we ask the nurses give him versed (pronounced "ver-said") by g-tube to relax him.  This makes him really loopy.

Then, they take him back to the OR where they give him laughing gas to help him sleep.  Once asleep they will give him an IV.

I've been told that "how one wakes up from anesthesia is determined by the way one falls asleep."  So, I was really happy when Bennett left our side for the operating room completely happy.  I had hoped that would mean his emergence from anesthesia would also be peaceful.  And it was.

Everything with the procedure itself went great.  Bennett did beautifully both during the procedure and in the hours afterwards.  His pain was kept under control and he showed no complications all day.

Picture of balloon dilation found at

When Bennett went in for his balloon dilation, his intestinal stricture was 6mm wide.  The GI doctor, under the watchful eye of the pediatric surgeon she elected to be there to advise her Bennett's situation, widened the stricture with the dilation of a balloon to 10mm.

The hope is that the GI doctor can eventually widen the stricture to 18mm to better allow for normal stooling.  However, this widening will have to be done in small increments allowing for tissue healing in between.

The biggest worry with widening strictures, which requires tiny tears in the tissue, is perforation (a hole) of the colon.  Because the stricture, created by inflammation, has to be torn to be widened, there is a very real risk of accidentally tearing a tiny hole in the intestinal wall.

If a perforation would happen, that would mean poop could enter into the abdominal cavity, by accident, which would not be good and could make Bennett very sick.  So, if we were to find a perforation, Bennett would be required to undergo surgery to fix it.

The surgeon mentioned this morning that he is not worried about Bennett this time.  Typically they see symptoms within 24 hours of the procedure.  This is why we stayed over night.  Since we have seen no fever or symptoms of infection, we can feel confident that Bennett's procedure went off without a hitch.

Due to the risk of perforation, the GI doctor worked very slowly to open/tear the stricture.  This required her to tear open the stricture only 2-4mm at a time.

That means that in order to move from 10mm to 18mm at 2-4mm at a time, we will need to do this same procedure several more times, starting in a few weeks.

Thankfully this experience being a really good one will hopefully set us up for another good one next time.  I admire his resiliency and trust.  With as much as he's had to go through, I don't think I would be so accommodating to those around me.  I'm grateful he keeps taking these experiences in stride.

Last night, I went to the cafeteria to grab some food.  While I was on the elevator, I ran in to a lady who had a lot of fun craft supplies in her hand.  I struck up a conversation and she invited me to bring Bennett to the hospital playroom for a short bit to play.

When I explained that Bennett was on reverse isolation due to the risk of infection control and therefore he cannot play in the playroom, the sweet lady offered to drop by several crafts for him to do in his room.

A short bit later, she knocked on our door with a stamp set and a mini backpack full of paint supplies and other projects in her hand.  Bennett and I were both beyond delighted at the thoughtfulness of both the woman who had dropped the supplies off and to the people who donated the supplies to the hospital.  Bennett really enjoyed the distraction.  I really enjoyed seeing him having a happy hospital experience.

It feels good knowing Bennett is leaving today feeling himself. I hate that we have to come back for more procedures.  Personally, I'm so so so over hospitals and surgery.  But we won't focus on that right now.  We've got summer to enjoy and swim lessons tomorrow!

Living life in the moment,

1 comment :

  1. I am soooo very glad to hear his procedure went well. <3 He seems very peaceful in these photos and can I just two are amazing parents!!! I'm sure a lot of his peace has to do with the peace you guys have and the Heavenly peace we have above. He is in my prayers and I love seeing updates-- especially with his smiling face. When are they thinking his next procedure will be??


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