21 April 2013

Heros of Hope Program

Here are two useful resources that I wanted to pass on to other CF families...

Some of you may not yet know about a great program honoring those with Cystic Fibrosis that I thought other families in our community might appreciate knowing about.  There is a program called "Heros of Hope" that has a website in which each month it spotlights one person courageous journey with Cystic Fibrosis.

I really like reading each month's "Heros of Hope" because it reminds me the strength and tenacity typically possessed by those with Cystic Fibrosis.  The great thing is anyone with Cystic Fibrosis can be nominated and the form is super easy:

I'd love to see more of our fighters on the website so if you know someone with Cystic Fibrosis that should be spotlighted online and whose story should be told, make sure to nominate them!

You can also find "Heros of Hope" on the CF Living Facebook page (although, sometimes the heros there are not updated quite as often.)

Speaking of CF Living, something else I recently came upon that I find pretty valuable are the CF Living Videos.  There is nothing better than to see others who are going through what we are going through.  So, I really love the videos CF Living offers videos on topics such as adapting to 'CF Normal,' accepting your life with CF and videos of others who have CF.

I hope these resources are helpful for other families in our CF community.  If you know of other really great CF resources available online, please leave a comment in the box below!  I'm always looking for ways to better connect to our community and to honor the fighters among us!

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