When we go to the CF Clinic, our appointment usually takes about two hours since have 5 different people we meet with (doctor, nurse, social worker, dietician, respiratory therapist). This was our corner of the room today.
My "work desk:" my notebook to keep notes, a book to keep me busy, my cellphone for human contact, Bennett's applesauce and wipes.
My list of things to talk to Dr. Dambro about.
Bennett is such a trooper. These days are long and even more difficult when you can't take a nap. Today was made worse as Bennett was poked for blood three times (the maximum times allowed by the clinic) and held down for an x-ray and throat culture.
Thankfully, he perked up once he got something in his tummy. A stroller is an amazing contraption during these appointments. I consider it a suitcase (since he carries all of our stuff), highchair and playpen all in one!
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