22 December 2009

Home for the Holidays

We are all together again.  We have now joined Oliver in Louisiana where we will stay for Christmas.  It is nice to be together again.  We feel (and certainly hope) that most of our CF battles are behind us for now.  The only two things we will be focused on now is keeping Bennett's lungs healthy and getting him to up to the 50th percentile in weight.

Bennett has a follow up appointment with the surgeon and his CF team in three weeks.  Bennett is doing well overall but continues to struggle handling the amount of food he needs to survive.  Things were going fairly well before the surgery so we believe this setback is directly related to his abdmoninal surgery. Bennett's colon, like his small intestines, are likely underdeveloped (understandable as his colon has never been used).  This makes it very easy for him to be overloaded during his feeds.

So, we are working on getting him back to feeding at his original capacity.  Hopefully, it won't take too long.  When he is not hurting, he is smiling and cooing.  We hope to catch it on video soon!


  1. HOORAY!!! Merry Christmas you guys!

  2. I can't believe you are in Lousiana and probably eating gumbo :) merry christmas. We are so thankful for you bennett! praying for your family this christmas.
    the brookins family


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