17 November 2009

Cook Hospital Day 6 - Update 9:08pm

This update is written by Breck as Brian has returned home to continue school work for now.

Bennett's Ph test (aka reflux test) came back negative.  He does not have reflux (at least not while he's on Prevacid, his acid reflux medication).  Therefore, it looks like he is not having problems swallowing or with reflux.  Our list of "tried interventions" and negative tests results are growing longer.  I suppose either way, this is very useful information.

Dr. Dambro (the CF doc) and Dr. O (the GI doc) have both been by to see Bennett now.  Since we have noticed that Bennett better with his bolus feedings during the day than he does with his continuous feedings at night, we have decided to bolus feed him throughout the day and night.  This means he will take 1 oz by mouth through a bottle and will have the other 2 oz fed through his g-button within an allotted amount of time, rather that be given feeds continuously without stopping.

I am fond of this idea because it gives Bennett's body about 2 hours between feedings.  So, if he's having pain or gas from the formula, he should have a short while to rest between his feedings.  I also like this idea because I can stop the feedings if it's evident that Bennett cannot tolerate them.

So far tonight, it is working.  Bennett seems very peaceful.  If this continues to improve, we may be discharged on Friday.  We're keeping our fingers crossed.

**P.S. Thank you to all who commented and prayed today.  I read each comment through my tears.  I truly felt like God was near today.

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