25 June 2015

Bennetts School Raises More than $1000 for a Cure for Cystic Fibrosis

Our family is extremely appreciative to the St. Paul's Episcopal School - Waco community who helped raised $1257.50 for the Cystic Fibrosis Foundation in honor of Bennett.  What an amazing group of generous people we have at the kids' school!
These are just some of the children who went above and beyond to help raise money for a cure for Bennett.  Truly, our hearts are overflowing with gratefulness to these sweet specific kids, as well as all those they represent at St. Paul's (staff, students and parents) who helped them make this happen.

Each year, I'm invited by the St. Paul's administration to come and speak about Bennett's condition.  This is a great way to teach children about helping others.  In addition, it helps children learn about Cystic Fibrosis and how sometimes people are sick, even when they don't look like it.  For the first time, I brought Bennett's percussion vest with me when I came. This picture captures the moment when I turned on the machine and Bennett started singing "Twinkle Twinkle Little Star."  The children, up until that moment had been curious and quite but when they heard Bennett's singing voice vibrating, they erupted in laughter.  Bennett loved getting to share his treatments with his school.  And the children and staff appreciated better understanding what it's like for someone with CF to take care of their lungs.

This sweet picture is of Meg, Eric and their mama Mandy who held a school-wide bakesale to raise money for Cystic Fibrosis.  It was Eric, who several years ago approached his mother to ask how he could help raise money for a cure for Bennett.  He and his sister have lead a bake sale fundraiser ever year ever since.  What a treasure this family is to ours!  

We are also thankful to BJ Restaurant in Waco who donated more than 100 warm cookies to St. Paul's to help the children celebrate all the money that was raised for a cure for Cystic Fibrosis.  The boys were at school when I dropped by the restaurant to pick up the cookies but the assistant manager and I decided to capture this moment next to pictures of other children with Cystic Fibrosis hoping for a cure.  BJ Restaurants' corporate chosen charity is the Cystic Fibrosis Foundation. BJ's donates a portion of profit of every one of their Pizookie desserts to helping find a cure for CF.  We are very appreciative that our local BJ's would want to support helping extend the life of one of their little customers.

Warm cookies from BJ's Restaurant await the children at lunch time - a sweet treat to thank such caring and thoughtful children and staff at a school who wants to see Bennett be able to live long and use his St. Paul's education to make the world a better place.

Thank you St. Paul's, BJ's Restaurants and all those who are helping us put an end to Cystic Fibrosis.

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