22 May 2013

CF Clinic April 2013

I have lots of photos to post regarding our Cystic Fibrosis Walks in Wilmington, St. Louis and Waco.  But, while I upload all the pictures, I wanted to go ahead and post about Bennett's Cystic Fibrosis Clinic appointment last month.

Bennett sees his Cystic Fibrosis Team every three months.  His last appointment was in April.  Going to the CF Clinic four times a year has become fairly routine.  We typically leave Waco to arrive in Dallas after the early Dallas morning traffic.  We spend the morning at the Clinic meeting with members of the team and then will grab lunch on our way back home.  I usually drive in to town in just enough time to pick Oliver up from school.  I appreciate the predictability of this process.  We never ever take this predictability for granted.  One of these days, we will be thrown for a loop, admitted after clinic or something else.  But, for now, we are thankful that our CF Clinic visits feel a bit routine.
Dallas Children's Hospital's Cystic Fibrosis Clinic recently began asking all of its Cystic Fibrosis patients to wear masks while in the clinic.  This is very hard to do.  (I'll be honest, I hate it things blocking my airway so wearing a mask makes me want to go insane.  But I do it to help Bennett feel less alone.)  I was very proud of Bennett for wearing his mask for as long as he did.

Before each appointment, each CF patient is given "vitals."  Bennett is weighed and his height is taken.  They listen to his heart rate and take his blood pressure.   They also measure the oxygen in his blood with an oximeter (see his finger).  While this is routine, it can be scary.  Fortunately, Bennett has become more and more comfortable with the process.

What a champion - my little three year getting blood pressure and blood oxygen measured while wearing his mask and holding his toys.  Thankfully, all of these things are what keeps Bennett healthy. I didn't take any pictures of his actual exam with his pulmonologist but that went equally as well.  He has gotten more comfortable with the typical looking in his ears, nose and throat and listening to his lungs.  Bennett continues to do very well and show no real signs of lung disease.  We feel incredibly blessed.

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