13 November 2012

So, it returns...

Despite surgery 10 months ago, Bennett's rectal prolapse is back.

It happened for the first time several months ago but it resolved itself spontaneously so I didn't think much more about it.

But on Wednesday, I received a phone call from the principal from Bennett's school called me with a very cool and calm voice, "Breck, we have a little problem with Bennett..."

I waited anxiously to hear...had his g-tube fallen out?  is he sick?  was there a problem with his enzymes?

The principal continued, "...his teachers just changed his diaper..."

I interrupted, "is his rectum protruding?'s totally fine.  I'll be right there."

I picked Bennett up from school and hoped his rectal prolapse would resolve on its own, which it did within a few hours.

But, two days later, it happened again, for more than 12 hours straight.  At this point, I realized, we've got to get this taken care of soon.  We have an appointment with the Pediatric Surgeon tomorrow afternoon.

I hope that I'm wrong but, from what I understand, there are really no options other than surgery again.

There is always a serious risk of his losing his bowel but the Pediatric Surgeon believes his sphincter muscle is so lose that the rectal prolapse is more annoying than life-threatening.  Either way, it's got to be dealt with soon.

At one point this evening, Brian mentioned, "this is not a good time for this..." to which I replied, "Cystic Fibrosis has never asked us if it's a good time, so it doesn't surprise me CF didn't bothered to ask us now."

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