So, last week, I came onset and participated in a 3-minute recorded interview, which aired live today. Since the interview was recorded, I didn't get to see the interview right after I gave it so I have been so nervous all week to see how it turned out: "did I make any sense at all!?" Thankfully, though, it looks like I did make some sort sense, afterall.
I am so touched to have been asked to share more about our journey with Bennett. It's one of the weapons I feel I have against this horrible disease: to share our story with the hopes it helps others along the way.
(or click here: http://ww2.momseveryday.com/video?autoStart=true&topVideoCatNo=default&clipId=7881723)
Oh, a few other thoughts about this Bear with a Vest...Hill-Rom apparently made the tiny Vest with consideration to the fact it will fit an American Girl doll. I thought that was so smart!!
And Melissa on Etsy who makes the Breathe Easier Nebulizer Mask Holder we use for Bennett's inhaled medications, worked with me to come up with a mask holder for "Pumpkin." It turns out that "Pumpkin's ears are huge and much farther apart than Bennett's ears. So, despite Melissa's best efforts (and she gave it a really good effort), the mask doesn't fit exactly right. But it's good enough for Bennett to get the idea. :)

BRECK! You did an amazing job. I media train people all the time at work, and you were terrific! I love seeing how the Lord is using your gifts as a journalist and your ease with television cameras to help your son. Amazing. PS: You should send this clip to the Hill-Rom and CF PR teams. They'd love it!
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