24 January 2012

Another ER Visit. But, hey, what's new?

I was just falling asleep a few hours ago reflecting Bennett's Cystic Fibrosis. Little did I know that I would get only about an hour of sleep before Cystic Fibrosis would force me out of bed, in the car and back to the ER to care for Bennett. 

Apparently Bennett's G-tube fell out again during the night. 

If it feels like we were *just* dealing with g-tube issues, it's because we were.  Just last October we had the same thing happen. 

So, needless to say, at this point, we may have to simply change the type of gastric tube that we're using, which will be not only inconvenient but will bring on new problems.  But that's to figure out with the doctor tomorrow.

I didn't realize but the Children's Hospital ER do not have G-tubes on hand and do not necessarily place them back in.  Instead, they put in a folly (a very soft tube) in the space where the G-tube came out and instructed us to return tomorrow during Pediatric Surgeon Clinic hours to have it put back in. 

At the clinic, the doctor will have to dilate the hole and replace the tube.  It was horrible last time and I dread doing it again.  They don't give him pain medicine so it's not fun for anybody. 

Nonetheless, I am going to try to drift off to sleep for a few hours before getting up and returning to the doctor.  At least this ER visit wasn't a hospital admission.  I can be thankful for that!


  1. do they know your name at the er now? I am so sorry. you are such a good mom.

  2. Glad u didn't end up in the hole!!! How frustrating that tube is though! Hope ur get it figured out!


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