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Update on Bennett's Feedings

Monday, November 14, 2011

Bennett is doing amazing these days!!  He is eating well, staying healthy and beginning to talk more and more!  We could not be any happier at his progress.

In fact, we have decided to stop most, if not all, of his therapies because of it.  We ended our Speech Therapy a few months ago, stopped our Early Childhood Intervention therapies a few weeks ago and will finish up our Occupational Therapy in December.  Bennett is beginning to improve with less and less support, demonstrating to us he will do just fine without bi-weekly therapy appointments.  We are ok with picking up with the therapies again in the future, if necessary but we're also quite anxious for a break.

Since we cut down on Bennett's tube feedings a few months ago, his appetite has increased.  This has been HUGE!  Believe it or not, these days, Bennett will eat just about anything - and while he does not eat alot of anything, he can now be motivated to eat more and more using toys or favorite foods.

Bennett loves M&M's, Reese's Buttercups, Chips, French Fries, Greek Yogurt, Hot Dogs, Turkey, Cheese, Peanut Butter and Jelly Sandwiches and Lifesavers Gummis.  But that's not all.  I could keep going!  He has an extensive list of foods he likes...and thankfully most of them are very fattening (exactly what he needs)!

Things are going so well with Bennett's eating that we are feeling more and more confident that eventually Bennett will not need the g-tube.  We won't take the g-tube out for many more years in case that changes sometime down the road.  But we are really close to getting him weaned.

Eating and gaining weight will be a lifelong battle for Bennett due to malabsorption issues with Cystic Fibrosis.  I am very aware we're in for the long haul.  However, every sign of improvement is worth celebrating!!

There is nothing more wonderful than listening to Bennett yell out "eat!" when he wakes up in the morning, steal a chip from the lunch table or want a bite of your sandwich at dinner.  I am so thankful for the journey that we have traveled before now.  It has been worth it!

4 Responses to “Update on Bennett's Feedings”

  1. Breck,

    So glad to hear. We definitely NEED to celebrate every success that we can! We are celebrating with you! Way to go Bennett, and way to go mom and dad!!!

    Have a blessed day!

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  2. Praise Him, Praise Him, Praise Him! Such good news to hear.

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  3. Thanks for sharing your great news about how AMAZING Bennett is doing health wise and with food! He sounds like he LOVES to eat and enjoys a large variety of food- amazing! IT's wonderful to watch your child enjoy fattening food that helps them gain weight and keep their lungs stable. It is even more enjoyable to see that they like doing it on their own without our pushes! Go Bennett!

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