07 July 2011

21 Months

:::EDIT: We went to a new CF Clinic today. I'm too tired to share tonight but will in the next day or two. Olga, a blog post to address your concerns is coming. For those who have sent emails or comments just loving on me and encouraging me as a mother, thank you. It brightens my day that people are with me on this journey. I appreciate the laughter and smiles I get from your words or offers to help..:::

Bennett just turned 21 Months a few days ago.  He is looking and acting more and more like a two year old and less like a baby.  This video proves it.  Bennett had just finished his feed and was sitting with us during our dinner at the table.  (He has no shirt because he played outside with water, soaking himself in the process.)  Bennett and Oliver are enjoying each other so much these days.  They miss each other when they are away from one another.  And Bennett finds his big brother hilarious.  Oliver can also get tickled at Bennett's sense of humor (I love to hear them crack each other up in the back of the car).  They rarely fight but it's usually because Bennett wants Oliver's car, which is a game that never seems to end as no matter what car Oliver has, Bennett wants it. :)

The video also shows that Bennett has really begun starting to talk.  He says bubble, boat, ball, Mama, yeah and no on a regular basis.  We have started asking him to speak to us more, which he does the best he can.  Bennett understands almost anything we say so we look forward to his expressive language skills catching up soon.  Until then, we are going to start teaching him sign language more so he can share with us what he is thinking!


  1. you are too gracious. i'll look forward to a post, whenever your time allows. i hope you had or will have a chance to watch dr. wilken's lecture (though he does sound more and more German the more tired he gets towards the end!); i had the privilege of visiting his hospital clinic in germany, and being present during two weans in seattle. it was amazing, and i deeply admire his balanced, non-ideological approach, and his fierce kindness and protection of children.
    bennett is an absolute cutie pie. i, too, am glad that my kiddos have each other -- that sibling bond is so important.

  2. I woud never waste a second thinking that I owed some anonymous internet person explanations as to why you are doing the best for your child. It is beyond presumptuous to assume that they have some sort of magical cure all for your child's ailments and to completely disregard every bit of medical advice which you have received, because of their own narrow understandings of the health and science fields.

  3. hey anonymous -- breck owes me NO explanation whatsoever, on anything. her blog sheds light on a medical practice that i find puzzling. having had a child on a tube, and having weaned that child, and participated in weans, and assisted numerous people in weans, and on a first-name basis with medical experts in weans, as well as with the president/coo of our regional pediatric hospital who credits me with kick-starting the tube-feeding management and tube-weaning improvement project at our hospital, i have just a wee bit of understanding.
    my comments stem from reading breck's struggles -- and having some knowledge about alternate methods, i shared what i know. if you knew something, wouldn't you share it?
    and i don't know about you, anonymous, but my experience in life and with a medical-special needs child (and as being the child of health research scientists myself) taught me to question medical advice when it didn't make sense or seemed to painful.
    breck owes me nothing. she has my email, i am not hiding anonymously on the internet.
    yes, i did get too emotionally invested in the story, because it is emotional and it hits very close to home. i admire her courage and her persistence and her bravery.

  4. Hey anonymous! Another anonymous coward here. It's so funny that you called Olga anonymous when you are and she's not! Hilarious! (Note: See how your comment is from "anonymous.")

    Olga, take the advice of anonymous and don't listen to what anonymous is saying!

    Funny anonymous person, Olga was clearly showing love and concern based on her own intense experiences with a child who could not eat anything orally for a long time. I'm very much in touch with the Seattle tube-feeding community so I know about Olga.

    If I'd not listened to people like her, with other ideas outside the status quo (which often is inadequate) my child would still have a feeding tube. FYI: My daughter has been tube-free for two years, but if I'd listened to certain "authorities" in my child's care, she'd still have a tube.

    So in a way, Olga is being more caring than you. She cares enough to step up and say what she knows and deeply feels, based on very real experiences of her own. She cares enough about kids to ask questions instead of just playing it safe and pretending to be okay with the status quo. Trust me, and it's clear Breck knows this having recently decided to switch a main portion of Bennett's care, you have to ask questions and constantly re-evaluate. At no time did Olga say to disregard "every bit of medical advice"... she was talking about weaning and was respectful and thoughtful and shared very generously about her own background and personal experiences, including videos of her own child's tube wean!

    In the tube-fed community here in Seattle, she is a rock star who spends hours each day helping other parents of tube-fed kids, without pay though she has an official advisory role with the children's hospital here, and because of her many, many kids are tube-free. Lives transformed. She does a lot more than post anonymous comments like you (and me, your fellow coward.)

    Olga cares enough to speak from the heart, even though it's not easy. I'm sorry it made you uncomfortable, but when it comes to our kids, we should appreciate all caring input, and not restrict ourselves to a singular view. If you're like most parents of special needs kids, you want to explore all possible options for your child. You want to peer down every avenue that may help. Then, you look at your child, you listen to your gut, and decide what to try next. Why are you so upset that someone, who had success with a different weaning method, wanted to share that with Breck, who had on this very blog gently voiced some misgivings and so graciously and really thoughtfully and confidently heard Olga out? It's almost insulting to Breck. You're saying that her response to Olga was wrong.

    Stay classy, and anonymous!

    Thanks for all you do, Olga. Many families are happier because of you.

  5. I still remember the ASL alphabet that you taught us in elementary school!


We love to hear from you! Please leave your comment below!

Note: Only a member of this blog may post a comment.