28 March 2011


On Friday, the morning after we gave Bennett his first dose of his appetite stimulant, Brian came in saying Bennett was having a hard time breathing.  He was breathing shallow and seemed to be wheezing. 

I wondered if possibly Bennett had had an allergic reaction to the medication or possibly it was a side effect of the med.  I gave him a breathing treatment and watched him, hoping as the medicine wore off, so would his breathing difficulities.

By 2pm on Friday afternoon, I decided to get it checked out.  I hated to find myself into the weekend worried about Bennett and having no recourse but the ER. 

The Pediatrician decided to give him a chest X-ray to make sure it wasn't pneumonia.  She did not believe his issues had anything to do with the appetite stimulant (which is an old medication that has been around for decades).  Apparently, the GI doctor (who prescribed the medication) also does not believe Bennett's wheezing and shallow breath had anything to do with the medication. 

Bennett's pediatrician believes he has bronchitis.  She gave us another antibiotic to add to his list and sent us home. 

The good thing is Bennett seems to be feeling well.  He has had some fever and a runny nose but overall seems quite well.  He is still wheezing today but has no cough.  The hope is this will subside in the next few days as it is likely that its a virus.

Overall, this is not a Cystic Fibrosis concern.  Normal kids get bugs like this.  But, any lung infection has the potential to turn into a larger infection or open the way for a nastier infection to make its home in Bennett's lungs.

As we went to sleep last night, I warned Brian, "this could be the start of something worse, you know.  We could end up seeing a bad throat culture at some point soon."  He nodded and understood.  We are extremely lucky that Bennett has gone this far without any lung issues.  Our prayer is infection will stay out of Bennett's lungs for even longer.

We have put the appetite stimulant on hold until Bennett is back to being fully well again.  With CF, it's two steps forward, one step back.  It's no surprise we hit our "one step back" with bronchitis.  Hopefully we'll be moving forward again soon!


  1. Oh no! Hoping Bennett recovers fast and keeps healthy. Keep us updated :)

  2. Oh no, poor Bennett! My prayers are always with your family. I know God is watching out for him and remember, God doesnt promise to keep us from the fire, but He will always be there to get us through it. ;) Love you guys, keep me posted and please let me know if you need anything!

  3. Yikes, I pray he recovers quickly.

    And by the way, congrats on being a top team leader for Great Strides! I just saw it in the email!!!

  4. I hope that Bennett gets better quickly! I hope you get no added worries. Hugs to all of you.


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