28 July 2010

It's not everyday you get a package from Norway!

It's not everyday that you get a package from Norway!  But today we did!

And what a cool lesson of thoughtfulness and world traveling it was!  This package came from Hanne, a Norwegian mother who also has a child with CF.  In fact, her little girl is just a little bit older than Bennett.  She recently contacted Breck after our blog entry about having to split enzymes and offered to send something that would help.

Inside the brown envelope that arrived in our mailbox was a small box.  And inside that were empty medicine bottles, a few scoopers and a blue thing - all things Hanne thought we could use.

There were a number of very cool things we noticed when we examined the things Hanne had sent.  First, we noticed how Creon (as it's spelled in America) is spelled "Kreon" in Norway, in fact, they call it "Kreon fur Kinder" (meaning Children's Creon).  Another interesting thing we noticed was braille was written on the Creon box.  And lastly, we noticed that Solvay is written on the items that were sent - telling us that Creon and Kreon are made by the same company...which is interesting since all of these cool Norwegian things that come with their Kreon cannot even be bought by Americans.

So, for example...On the left is Bennett's Creon.  It comes in a big orange bottle inside blue and red capsules.  We pick up a 30 day supply and must open each capsule and pour it on Bennett's food (until he's old enough to swallow his enzymes).  However, in Norway, the Creon (the tiny white beads) come in small glass bottles.  Norwegians only have to use a tiny plastic scooper (on the right) to scoop out the appropriate amount of enzymes.  How cool is that? (This is probably cool only to other mothers who are *sick* of opening up capsules - opening 15 capsules a day gets monotonous quick!)

Notice the tiny scooper (isn't it darling?  perfect for a Barbie cup!) is the same size as one capsule.

But wait - the Norwegians decided that even that was too labor intentsive.  So, they came up with something even better.  We're not sure what this is called but we figured out how it worked pretty quickly.

Underneath this blue piece of plastic is where you place the glass jar of enzymes (this jar is empty but in Norway, the glass comes full).

Then, all one has to do is turn the blue thing upside down and click the white bar back and forth.  This nifty contraption actually "doles out" the perfect amount of enzymes, depending on how much you need.  Click it three times to get three capsules worth.  Click more or less depending on your needs.  Isn't that awesome??  So easy!

So, Hanne, seeing the pain of poor Americans unable to utilize the newest of Creon inventions, decided to send us bottles and materials from her daughter's medication when she was done.  We have appreciated it so much.  Now, we can open our capsules and put them in the jars to use as we need.  The above picture is of about 30 capsules.  It takes forever but we're pretty sure it's well worth the trouble to open the capsules at one time, rather than everytime we use them.  But we've got our work cut out for us.  It's going to take ALOT of capsules to fill up that bottle!

Thank you so much Hanne for sending us such cool and time-effectient goodies in the mail.  And thank you Norwegians for coming up with such fabulous ideas!!


  1. That is so awesome!! I would pay her to send more! Let me know if she offers :)

  2. How thoughtful of them to send all that to you! Love, MS.Ann

  3. You are welcome Breck. I hope it will come handy, its pain enough having to deal with all the other daily stuff with CF. Medication should be easier done than having to open the baby's capsules by hand before each meal. I can not imagine having to open 15 to 25 capsules a day till the kid is 6 or 7 years old and able to swallow them.
    Say thank you to the dad that invented that blue dispenser!
    "Kreon fur kinder" is German. In Norway we don't have enough users to get it registered as a medication even and has to apply to get it on a registration free form from the pharmacy. (did this even make sense?)
    MHughes: I can send to you jars and those scoops, but right now I have only 2 blue dispensers left myself and those are in use here at a daily bases. I can ask the pharmacy if its possible for me to buy a whole But these 3 I had (now two left) I got from our CF center. We have one center for CF for all of Norway. :) Guess I can ask them too how I can get more? I'll do some research here.

  4. btw..:) I do in fact use the empty jars too and do save them all after they are empty... very handy for scrap booking stuff. I don't save those scoops for Barbie

  5. How wonderful! What a special friend to do something like that =) Yay for Norway!

  6. That is so great!! I know this is an old post, but I followed your link. We are missing out for sure!


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