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Visiting Another Great Strides Walk

Sunday, May 16, 2010


Yesterday, we drove about an hour away to attend the Cystic Fibrosis Great Strides walk in Killeen, Texas.  Great Strides is a national fundraising event with similar walks in cities across the country.  (Notice the Hawaiian lei on Bennett?  Each child with CF was given one to wear at the walk.  The Lei both designated the child has special and helped parents know which children to be cautious of getting too close to due to the potential of spreading of infections among other Cystic Fibrosis patients.)


We decided to attend this walk because we know several CF families in the Killeen area.  We were especially excited to atten since we were unable to experience our own Waco Great Strides event due to rain.  This picture doesn't do it justice but it was tons of fun!  We were too busy chatting to get good pictures but there was a band, free food, a playground, a blowup jumpy thing for the kids and lots of different volunteers who made the event really enjoyable.


There was one family, in particular, we came to meet.  Julie, who has a kindergarten daughter with CF, came to visit Breck at the hospital in Temple while Bennett was still in the NICU shortly after we learned of Bennett's diagnosis.  Julie has become a great resource for families new to the disease.



Here is Julie (fourth from the left), Macy (with the lei) and their family taking their picture at the Great Strides sign (something most families enjoy doing each year to document the event).


Another family we had the priviledge of meeting was the Green Family.  Mitch and Season have two children, Zoe (in 2nd grade) and Jaxon (6 months old).  They found us at the walk (since we were wearing Bennett's tshirts) and knew about us from our blog.  We are so glad they found us!
 

Their little Jaxon (about a month younger than Bennett) has had a similar journey as Bennett.  He was born with meconium ileus, was in the NICU for a long time after he was born and was hospitalized for "failure to thrive."  Jaxon is even on the same high calorie formula as Bennett, although Jaxon does not have a g-button.  Thankfully, Jaxon is doing much better now.  While their doctors are different, Jaxon and Bennett go to the same CF Clinic at Cook Hospital in Fort Worth.  We look forward to keeping in touch with the Green family as we watch our boys get older.

We had a great time at the walk and visiting with other families!  Yesterday's walk raised over $60,000 to keep our children alive!   Here's an article detailing more about the Killeen Great Strides Walk: http://www.kdhnews.com/news/story.aspx?s=41558

2 Responses to “Visiting Another Great Strides Walk”

  1. So lucky that you guys got to attend two GS! Way to support our cause :) It's always nice to meet other families with children who have cf, it helps me feel not so alone. Can't wait to meet you Breck, next summer!

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  2. Great pics! Glad you got to meet some other families, what a great support system you are putting into place.

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