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Diagnosis

Tuesday, October 6, 2009

Just as we were getting settled into our new "normal", we learned the results of Bennett's genetic testing.

Bennett has Cystic Fibrosis.

We are very saddened by this news as it means Bennett will struggle with a life-shortening disease all his life.  His daily routine will be filled with therapies and medications that will be necessary just to keep him alive.

In some ways, we feel like we just started this whole situation all over again: the shock, the grief, the hope.

We have begun the process of reaching out to get more information on Cystic Fibrosis and what Bennett's prognosis with the disease looks like.  We are encouraged that he is getting therapy so early in his life and that Cystic Fibrosis is a well-researched disease (meaning a cure may not be too far off).

However, we must be honest, this is terribly disappointing for us... to know your child will live the rest of his life in suffering and to face the possibility of having bury your own child.

Great sadness.

But we know, God is good.   And we can trust He has a plan for Bennett's life.


16 Responses to “Diagnosis”

  1. My heart hurts for both of you. I've prayed and prayed that this would not be the outcome. However, God has a plan. We must remember that it's HIS will, not ours. God does not give us anything that we can't handle.

    I know you must be struggling. I will continue to pray for strength for you, and for Bennett. Know that we love you all very much!

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  2. Oh, I am so sad for you and so amazed in your hope. My prayers continue...

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  3. We're so sorry. We love you, and will continue to pray for your family as you adjust to this news. Sending kisses to sweet little Bennett...

    Also, I'm so encouraged to see that every time you post pictures, he has more monitors missing. Praying that God continues to heal his little body so you can hold him soon.

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  4. We'll continue to pray for God's mercy and HIS grace! God has prepared you and Brian with what you will need to care for Bennett and HE does have a plan for Bennett's life. Trust HIM, sweet Brittney Breck; He will NOT let you down. I love you dearly!

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  5. Oh Breck, my heart is broken for you. God loves you and your family to the ends of the earth. He will equip you with everything you need and I can only imagine how this new life will grow your entire family in the Lord. God is good all the time.

    But, my heart is still broken.

    Praying for you guys and love you so much!!

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  6. I am so sorry to hear this news. But I am thankful that there are medical advances and miracles every day. We are continuing to pray for little Bennett and for your family. Chris and Mandy send their love and prayers too. I love what Cindy W said above - she's so right. God will NOT let you down. Even in this, God will carry you through.

    When I think back to all the youth trips I went on with you, I remember you as the Encourager - the "Barnabus" for the group. You always took time to slip all of us a little note to cheer us up if our day was rough, or to celebrate with us if something wonderful had happened. I hope I can give some of that encouragement and love back to you now. I love you, Breck, and your precious family. <>< Mrs. Marsha

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  7. We're praying for you all.

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  8. Breck, I still haven't met you. Kristen Polk (Lindsay's friend) is a good friend of mine. and our husbands are in school together. We have been keeping up with what is going on with Bennett and cried with you through this. We will continue to pray for his PRECIOUS life and for Oliver (and for you guys).
    mary mac

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  9. Breck, "He is before all things and in Him all things hold together" Col 1:17 I don't know what to say except that I'm praying. I praise God for the relationship He began between us 10 years ago at camp and for the opportunity that I have now to lift you up. He DOES have a plan and I pray that He'll give you a peace that surpasses all understanding. Wishing that I could give you a big overdue hug right now. Please let me know if there's anything I can do.

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  10. Upon hearing this news my mind immediately went to a story Anne Lamott wrote about two of her friends whose daughter was diagnosed with C.F. Here is a portion of it...

    "We all kept cooking, and walking the dog, and even when things got really bad and scary, we still showed up. And that is how we built our Amish barn. Now, eight months later, things are sometimes pretty terrible for them in a lot of ways, but at the same time, they got a miracle. It wasn't the kind that comes in on a Macy's Thanksgiving Day float. And it wasn't the one they wanted, where God would reach down from the sky and touch the baby with His magic wand and restore her to perfect health. Maybe that will still happen, who knows? I wouldn't put anything past Him, because he is one crafty mo-fo. Still, they did get a miracle, one of those dusty little red wagon miracles, and they know it."

    Breck and Brian, Oliver and Bennett, we are all praying for a miracle-- Both for the Macy's Thanksgiving Day float kind, and the little red wagon variety. Your UBC family will be with you, watching for it.

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  11. I'm very sorry. My wife has CF and she has lived more in her 27 years than most live in two lifetimes...it's only a death sentence if you choose to make it such! Please let me know if I can answer any CF questions.

    BTW, we're very close to a cure, which means your son may only live with CF for a small part of his life!

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  12. Oh, Breck. Sometimes there are no words that can comfort the soul. And while it's impossible to explain why some things happen -- especially to good people -- you know as well as I that God is surrounding you and your family with His love and He will not leave you. He will be there to provide comfort and strength and hope and whatever it is that you and your family need. My prayers will continue now more than ever for little Bennett.

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  13. My heart and prayers go out to your family. May God hold you close - especially little Bennett. Love you!

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  14. We are continually praying for you.

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  15. Breck, we don't know each other. We moved to Minden 10 years ago. My daughter Rachael graduated with Brook-Lyn.
    I'm saddened with your situation with Bennett. God will be with you as long as you ask Him to be.
    David and I know from personal experience that God will be there every step of the way. There is the peace that passes all understanding. We have lost a child. Not to a disase, but in a swimming accident two days before his high school graduation.
    I did not tell you that to make you sad, but to tell you that our GOD is good. He is hearing your pleas for your little one. He IS listening and He WILL give you what you need during this time. I will add little Bennett to our prayer list at church tonight.
    I see that he was born on 30 September. That is my husband's birthday too! I am encouraged by the post from the husband. I don't know anything about this disease, but I will pray that they will find a cure for Bennett.
    I will also pray that you and your husband will stay strong for each other. And God will be there right in the middle of it all!! :)

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  16. I am so sorry to hear this news. I just wish that the pain that Bennett is going through could be taken away. Cynthia and I are holding the entire Gamel family close in our thoughts and prayers. Please know we are here for you every step of the way...and we're only a phone call away. I know that Bennett (and Oliver) has wonderful parents that are going to be there for him every step of the way throughout this life. We love you guys.

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