We are home!
No more masks, no more IVs, no more beeping, no more food trays, no more medical students, no more labs, no more x-rays, no more asking for permission to get medicine, no more waiting all day for the doctor, no more stuck inside, no more interruptions!
We are home - surrounded by people and things that heals a heart!
|I took this picture right before we left the hospital. That smile and the sparkles in his eyes speak volumes!|
I was hopeful we would go home but experience has taught me that you never know you're actually leaving until you have discharge papers in hand.
I was a little disappointed that he seemed to need pain meds more than the day before, since we had had such a good day Tuesday. But when I told our Pediatric Surgeon that I was disappointed, she said, "oh, don't worry about that. It's totally normal." She went on to explain that recovery often works like that: as the patient feels better, they will attempt do do things they wouldn't normally...and then they will often hurt more the next day. She explained it's part of the process and that this was the very reason she wanted to see Bennett to stay home from school one more week. Often kids will go to school and forget they need to be careful so that, by days end, they are in a lot of pain.
|This is the view outside our window into the hallway. Because we were on reverse isolation, we had to always keep our door closed. So, I stood here many times looking out past the words that the nurses placed on the window to decorate the door. The "Quiet Time 1-3pm" sign across the hall made for hospital guests to take note was interesting to see as I would have much rather it have said, "Quiet Time 1-3am" and been for the nurses. ;)|
I told her I was headed home and I wouldn't be turning around. I explained I would come tomorrow or Saturday. (One could be proud of me for not telling her I was never coming back!)
So, I will go pick up Bennett's Vest today or tomorrow. Thankfully, we have the AffloVest that we are able to use until then.
No need to prepare a meal and no need to wash dishes - both are gifts from friends near and far who have indicated they are with us in this journey.
|This meal is one of the one of the meals mailed to us from dear friends who used the website "Take Them A Meal". Meals from "Take Them A Meal" apparently show up frozen and ready to put in the oven and come with a card that state directions and offer a picture of the meal. This meal was delicious!|
I am also thankful for the grocery supplies that have been dropped off while we were in the hospital - supplies such as toilet paper, milk, paper plates and plastic silverware. Not having to worry about washing dishes or running to the store for the basics after being in the hospital is like feeling like you've won the lottery (especially when we ran out of toilet paper this morning)!
We have had friends send such creative things that have filled gaps we didn't even know we had. We are thankful for friends who have offered to drop off Starbucks, who have sent gifts to the children, who have sent gift cards or have picked up our children and allowed them to play at their houses.
It's so hard to ask for help but the overwhelming love and support have made asking for help when we have needed it just a little bit easier.
He thought I said 'what do you miss about the hospital'. His face dropped all expression and he answered, "nothing."
Realizing he had misunderstood me, I said, "No, I said, what did you miss about home while you were at the hospital?"
He said, "I missed being together. I missed old my toys. And I missed the noise. Being at the hospital is quiet and that is lonely."
Then, he interjected, "...but that's what Daddy said home was like. Daddy said it was quiet here without me."
So, cheers to noise of home - the laughing, the crying, the banging, the shouting. Home is where my heart is.